Got My Going Home Clothes On!

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I got my going home clothes on, I got my going home clothes on! Yay!
All I am waiting for right now is the oral steroids and for them to observe me for a few hours to make sure I am not going to have a set back. Almost six days in the hospital….boy will I be happy to blow this pop stand.

MY plan is to not spend anymore time in the hospital, as a patient, this year. 
Thank you, all of you, who kept me in your thoughts and prayers and put up with my ramblings from boredom yesterday.  You all did more than you realize in helping me keep a positive attitude while I was in here.  
Have a wonderful, wonderful day, Neighbors!

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Morning Update

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It is not even 8:00 am yet and I have already taken my modified bath and changed pj’s. I do not think I lost much breath if at all while doing that. Just yesterday I was still losing breath during that activity. I am so glad to breath with only a little wheeze. When my mother gets here later, I think I will have her come with me and I will do a few laps in the hall way. That should be a good test on how my lungs are really doing.

Fortunately, since I do not have an IV stuck to me all the time, just the catheter that is only used when I need medications, I can wear normal pj’s and not the hospital’s gowns.  Otherwise I might end up looking like this guy…..

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Have a good day, Neighbors!

ps. my morning blood sugar was 239, best reading yet since steroids were started.
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Oh What A Good Hospital Day!

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I could not have asked for a better day in the hospital.  My breathing has remained better all day, and with the four different insulins, my blood sugar has stayed under 300 most of the day, just now it was 316.

This morning after the PA from the pulmonologist office came over and gave me her news, the hospitalist who is doing my diabetes management said that the fourth insulin that he added seemed to have really helped a lot.  He said it was the first 24 hours that my blood sugar had not spiked way out of control.  So had a shot of that extra insulin again and he is going up another 10 units on my lantus (the long lasting insulin).  He thinks with all the steroids that I have had, even though my blood sugar is high, that we are keeping as good of control over it as we can.

Then a doctor from the pulminologist office came by and he actually gave me a tentative go home date.  Tomorrow, as the PA discussed we are going to reduce the IV steroids a little more, and see how I tolerate that.  Then on Tuesday morning the plan is to not give me any IV steroids, just oral steroids, and watch me through the day.  If I do not have a set back then I get to go home sometime Tuesday afternoon, probably.

 I call that a good day, as far as being in the hospital goes.

Have a great night, Neighbors!!

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A Better Morning In The Hospital

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Hey Everyone!  I am still in the hospital, but I am feeling better.  I do not get as winded walking a short way anymore and I am not having to gasp for air as much when I am being still.  I have to say today is already turning out better breathing wise than it has been since I have been here.

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Based on what the Physician’s Assistant from the pulmonologist’s office just said, I am thinking I will be here at least through tomorrow, because they want to continue to wean me off the IV steroids.  They are not reducing the dose today, they do not want to take it down too fast and cause me to have a set back.  The respiratory therapist I saw this morning, said I do not have to be woken for the two in the morning breathing treatment anymore, but I am welcome to call if I need it.  She also reduced the amount of oxygen I am getting, not much, only down 1%, but that also is to get me weaned off of the oxygen slowly.  My blood sugar was 279, yes I know that is high, however, there is no way to achieve a normal blood sugar while on steroids, and the 279 is significantly better than it was yesterday.  It has come down around 100 points or so.  It only took four different type of steroids to achieve that. 

I had to have my IV redone last night.  I am not very good with IV’s, they are either hard to start, or hard to maintain, most of the time both.  It took two ladies three tries a piece, all together six tries before they were able to get it started, but it feels so much better than the first one did.  The first one was on the back of my hand, the new one is on my arm.

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New IV Site

I am being giving a shot of an anti-coagulant one a day, to prevent blood clots since I am not very mobile right now.  That means I am bruising pretty darn easy.

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 More to come in a bit! 

Have a wonderful day Neighbors!

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Hospital Birthday

The Birthday in the Hospital is not as bad as it could have been.  I got some pretty balloons, birthday cards and a few decorations for my room.  My mom was the thoughtful to make my room brighter.  My niece brought me a Hannah Montana card, told me Hannah Montana is her favorite rock star.  My niece is only four so I have forgiven her for her taste in music.  Oh…she also likes the Jonas Brothers.  When I asked her if she thought they were cute, she said yes!  Her Daddy better watch out!

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The hospital brought me angel food cake and fresh strawberries for my birthday cake.  I really enjoyed it….the only thing that would have made it better was if some chocolate had been involved.  Unfortunately, no chocolate for me.

This hospital is doing a much, much better job at keeping my blood sugar from getting horribly out of control.  The highest it has been 389, but most of the time it has been under 300, in the high 200’s.  The doctor dealing with the blood sugar said he might, starting giving me insulin by IV, that would mean I would have to change rooms though.  It would be too easy for things to go bad with such a direct line of insulin, so I would need more intensive supervision. 

As much as I like being alone, there is a difference in being alone because I am choosing to and being alone because I am forced to.  I am experiencing some loneliness right about now. I am watching American Loggers because it is a show my husband likes, and talking to ya’ll on the blog, so I am hoping that it will help with my loneliness.  I know that I am feeling better, just because of the fact that I am even wanting to blog.  I was feeling so bad because of the lack of being able to breath and the things going on with my nursing care, as well as just being in the hospital, that I did not feel like blogging earlier. 

Ok going to run for now, I am sure I will send out some more rambling later.

Be well, my neighbors!

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Spirometer And Better Care

Today I am going to teach you some numbers that have to do with Asthma. Yesterday, before the doctor sent me over here I had to have a breathing test at his office. It was done on a machine called a spirometer. Basically it measures the amount of air you can blow out.

The process you have to go through to have this machine take this measurement is not bad, it can just be a little tiring when you are having a difficult time breathing.

This is what the spirometer looks like.
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Basically, when I saw the Doctor yesterday, my ability to exhale was half of what it was the last time I saw him. Which is a big change. It indicates some sort of blockage, which in my case is my airways constricting.

I am feeling some better today, however, still quite a bit of a ways to go before I am well enough to go home.  Just walking the few feet from my bed to the bathroom is horrible enough to make it so I have no breath left.  I had to get respiratory to come and give me an extra breathing treatment after my last bathroom trip

As far as the horrible nursing care I got yesterday afternoon, things are very much improved. 

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Depresion and Marriage

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  Is it possible to maintain a marriage when one spouse has major depression, especially major depression that lasts for years? The statistics are certainly not encouraging.  Marriages with a depressed loved one are nine times more likely to end in divorce.  Add this number to the 60% divorce rate we already have, and it seems to me that most marriages where there is a depressed spouse do not survive. 


One of the key elements of a marriage is the give and take that is supposed to exist between the married couple.  There are times when it is not an equal give and take between the spouses, one having to give more than the other, but ultimately there is always a give and take.  This is not the case in a marriage where one of the marriage partners is dealing with a case of long term, major depression.  




The spouse without the depression will often find themselves picking up more and more of the slack.  Taking care of things that would normally be done by the other spouse.  In the short term, this works out OK, however, as the depression drags on and on, and the one spouse is continuing to be stretched thin taking care of things, a certain amount of resentment and frustration starts to build.

The more the depression the goes on the more resentment and frustration build up.  I know that my husband expressed to me more than once that he felt like a single parent, when I was at my worst.  In addition to feeling like a single parent, there was the added pressure of worrying about me and making sure I was OK. 




Accepting that the problem is depression is half the battle for both spouses.  It is easy to blame outside sources for why your spouse is in such pain.  Before I started getting treatment for my depression my husband felt the sole reason I was acting the way I was, was because of how my son left our home. He did not understand that the depression had been there before that incident, and the incident just made it worse.  




Depression affects not only the person with the diagnosis, but it affects the marriage as a whole.  Especially if the depression goes untreated.  Before my depression was diagnosed and I started the recovery process, my husband thought that I did not love him anymore.  From his perspective, I was withdrawn, distant, and did not want to have anything to do with him.  He felt hurt and taken advantage of, because I was incapable of helping him around the house.  Our marriage was already under strain by the time I started therapy.  




Then the things I was learning and doing as a result of the therapy added more stress to our marriage.  As far as my husband was concerned the outcome of my therapy was far from what he expected.  It has taken him some time to come to grips with the fact that I will not be the person he married. 

Both people, not just the one with depression need a support system.  It is imperative that even the person without depression has good support to help them through the rough patches.  It is also important that both spouses work together on plans and other things that will give both parties guidelines to follow during the recovery process.  A support system also can help the married couple identify when thing are not gong a well


I personally think that it is possible to maintain a marriage when one of the spouses is living with severe depression.  However, it is a unique challenge that requires both parties to make the effort to keep the marriage together.  


One of the things I used to do was to write contracts with my husband about things I would or would not do.  An example is, shortly after I tried to commit suicide, my husband was asked to work out of town.  He was hesitant about going because he was afraid that I would try to kill myself again, I was still having suicidal thoughts.  We came up with two solutions that made it so he felt like he could work out of town.  First, I actually wrote a contract between me and him that stated that I would not try and kill myself during the time he was out of town.  Also, knowing how I would isolate myself to attempt suicide, we decided I would stay at my grandmother’s house while he was out of town.

As far as my mine and my husband’s marriage is concerned, things are still a long way from perfect.  However, each of us is trying as hard as we can to keep it together.  We are also taking more time to understand how my depression has affected us from each other’s point of view.  


I try really hard on my bad days to show him affection and tell him I love him, so he does not feel that I do not appreciate all the things he does for me.  I can tell he is trying very hard to not become frustrated when I have a bad day and can not be the marriage partner he needs. 

I also make a concerted effort to not think about those statistics.  I feel like if I pay attention to them too much, then I am allowing them to pigeonhole my marriage into one of the failures.  I want to keep my mind on my marriage surviving and thriving.

Too Cool For The Spa – Part II

I am going to finish “Too Cool For The Spa” today.  I apologize for not finishing it yesterday, but I just could not stay awake any longer and I had been working on that one post all day long.  Some days are harder than others, in staying awake.  My depression medications make me sleepy, some days worse than others.

After leaving my brother’s place of work, we were finally headed to our last stop, mine and my mother’s appointments with Dr. Szumstein.  Again we arrived early.   We got to his office and proceeded to try and find a parking spot in the parking deck.  It was very busy, and the only spot we could find was on the very top deck.  

This is a picture I took of the Atlanta Skyline from the top deck of the parking deck.  If you look carefully, you can see the city of Atlanta off in the distance.

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The waiting room at this practice had even more baseball memorabilia than the other office had.  

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After signing in at Georgia Lung Associates we did not have to wait very long for Dr. Szumstein to call us back.  One of the things I like about this practice, is that the doctors actually come and get you from the waiting room.  It makes everything so much more pleasant that way, not too mention it gives you the impression that the patients are really cared for there.  That is not something you find very often anymore.  

When we have appointments together, Dr. Szumstein will put us in the same room.  My mother and I had a discussion over who would get the big chair.  Neither one of us really wanted it.  My mother prevailed in that discussion, after all she is older than me.


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When Dr. Szumstein came back into our room, I asked him about taking his picture for my blog.  I think he thought I lost my mind, but he did say I could take his picture.  He sent mom off to have her breathing tested.  While she was out of the room, he asked how I was doing.  He knew about my depression and suicide attempt.  I had to tell him because many of the depression drugs out there make Restless Leg Syndrome worse, and he has to know so he can make informed decisions about increasing my doses of Restless Leg Syndrome medication.  He seemed very pleased to find out that I was doing much better. 

 Dr. Szumstein is probably my favorite doctor I have ever had.  He is a very nice man as well as being a very good doctor.  If only one of us is there for an appointment, he always takes the time to ask about the other members of the family.  

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Dr. Szumstein then sent me off for my breathing test.  The technician who did my test for me that day was kind of enough to take a picture of me while I was in the testing booth.  This is the test I have to do every time I go to the pulmonologist.  It tests to see how well I am breathing and compares the results to previous tests.  

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 Dr. Szumstein came back into our room and gave us our tests results.  While he was looking over our information, I told him how mom and I had been comparing our wheezes as we were walking down the hall.  She had a whistle wheeze and I had more of a rumbling wheeze.  Dr. Szumstein thought this was pretty funny and replied with “Awesome!”  

Dr. Szumstein did not seem worried by anything he saw in our breathing tests results, however, my tests results were worse than they had been right after I had gotten out of the hospital for an asthma attack.  He also said that in all the time I had been seeing him, I only had one breathing test that was worse than this one.  No wonder I have been feeling like crap lately.  


The other thing that I really like about Dr. Szumstein, is that he is really good about giving out samples of medications.  He knows that even with prescription insurance, it is still expensive to get everything filled.  So he gave me and my mother plenty of samples to last us a while.


We were finally finished with  all our appointments for the day and we could start back to the house.  I believe my daughter was rather happy to be done with all that waiting around for people.

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I think my family is rather cool.  Instead of the women getting together for a day at the spa, we got together for a day at the doctors’.  We are just that cool, too cool for the spa!  

As a  side note:  I think maybe I should put my mother in charge of my schedule since she seems to get every where either early or on time.

Hospitals and Frogs…..

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For years my family has had this really odd tradition.  If I had to point to anyone as the person who started this tradition, it would have to be two people.  My mother and father are the ones responsible.  

In 1996 my mother was diagnosed with non-hodgkins lymphoma.  At the end of all her treatments she had to have major surgery.  My mom is like me, she does not want flowers in her hospital room.  It makes it look too much like a funeral.  In addition since her immune system was severely compromised, she really did not need any anyways.  My father bought her a frog.  

At that time my daughter was an infant and my son was about seven.  Well, my son really, really, and I mean really wanted his grandmother’s frog.  She is the type of grandmother that rarely says “no”. So he was pretty convinced he was going to get it.  This time his cute, little, pouty face did not work.  She said “no” and something about how it meant something to her since Grandad gave it to her.  

In an effort to appease my son, we told him that if he ever was in the hospital we would buy him his own frog.  The very next year, he was in the hospital with a broken femur.  So the tradition became firmly implanted in our lives.

A few years ago my daughter developed appendicitis, obviously she was in the hospital.  She had no memory of my mom being in the hospital or my son, but she had heard us talk about the “hospital frog”.  So she wanted her own.  We found one in the gift shop.  At that time we had no idea that it was a webkinz, and just how special webkinz were, but that is a story for another day.  

When I have been in the hospital, I have gotten my hospital frogs.  I have several now.  This last time I was in the hospital, I did not get one.  My husband kept working during the day, visited me at night, and doing other stuff so he forgot my hospital frog.  Last week as a joke I mentioned how I did not get my hospital frog.  

Apparently, he remembered what I said and bought me one today.  It is a very special one.

Confession Is Good For The Soul

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Confession is good for the soul is what I have been told.  I hope it is, because today is my day to confess.  

Since Friday my mental health has not been as good has it has been.  It is not as bad as it can get, but that is not saying a lot.  I have been down, wanting to isolate myself, quiet, and I have not felt like communicating with anyone.  I have a counselor’s appointment Thursday so I will be sure to bring it up to her then.  I have been faking feeling OK on my blog and with my daughter.  However, even over the phone my husband can tell that I am not in a good frame of mind.   I even lacked the motivation to take a shower and get dressed for a couple of days.  

Some positives are I am not having any suicidal thoughts, and I am not having a negative dialogue running through my head.  I mostly feel disengaged from things.  

It could be a normal “down” time that everyone goes through, but it is still a struggle for me to identify “normal” emotions as compared to my out of control emotions.  That is why running this past the counselor is a good thing, she helps me identify which category my emotions are in.  


So that is my confession.  I felt compelled to do it because from the beginning of my recovery process I promised I would always tell the truth about what was going on.  Sometimes the person I need to tell the truth to the most is myself.